The National Down Syndrome Congress (NDSC) is one of the oldest national organisations in this field, founded in 1973. It is regarded as the most comprehensive national reference from the moment of prenatal diagnosis through to adulthood, with a network spanning all fifty American states. Website: ndsccenter.org
What Families Can Benefit From
- Free Helpline: specialists who answer any query and connect callers to appropriate local resources
- New Family Grants: registration grants for families with a child with Down syndrome aged 3 or younger to attend the annual convention
- "NDSC Insider" Monthly Newsletter: regular updates on research, news, and events
- Parent Group Network: coordination of local parent groups nationwide for connection and mutual support
What Individuals with Down Syndrome Can Benefit From
- Youth and Adult Convention: a dedicated track within the annual convention offering sessions and activities directed at individuals themselves, not only their families
- Leadership and Self-Advocacy Opportunities: programmes enabling individuals to speak in their own voices and participate in decision-making
- Children's Camp: a recreational and educational activity designed for younger children within the annual convention
What Healthcare Professionals Can Benefit From
- Up-to-Date Medical Resources: current scientific information on the medical concerns associated with Down syndrome
- DS-Connect: the national Down syndrome registry enabling individuals and families to participate in scientific research, and giving professionals access to valuable research data
- Professionals Track at the Convention: specialist sessions and workshops for doctors, therapists, and practitioners during the annual convention
The Annual Convention — The Heart of NDSC's Work
The NDSC Annual Convention is the world's largest annual gathering of individuals with Down syndrome, their families, and professionals. It features four parallel tracks:
- Families and Professionals: educational and training sessions
- Youth and Adults Convention: directed at individuals with Down syndrome themselves
- Siblings Convention: for siblings of children with Down syndrome
- Children's Camp: for younger children
What Advocates Can Benefit From
- National Down Syndrome Advocacy Coalition (NDAC): a grassroots network of advocates across all fifty states, issuing updates, alerts, and policy toolkits
- Legislative Advocacy: support and guidance for influencing local and national policy